Contact

Mailing Address

Myotonic Dystrophy Foundation
1259 El Camino Real, Ste. 150
Menlo Park, CA 94025, USA

Office Address

Myotonic Dystrophy Foundation
431 Burgess Dr., Ste. 200
Menlo Park, CA 94025, USA

Phone

Toll Free: 86-MYOTONIC or 866-968-6642
Direct: 650-267-5562

FAX

650-267-5564

Myotonic Dystrophy News

May 14, 2020

Myotonic is Moving to a New Location!

We are excited to share that on May 23, 2020 Myotonic will be moving to a new location just across the San Francisco Bay into downtown Oakland!

May 14, 2020

Have you met Miles the Myotonic Lion?

Miles is a cute, stuffed animal lion that has traveled the world to support for children diagnosed with myotonic dystrophy over the last 5 years.

May 14, 2020

#MyGratitude Moments

In these everchanging times, it’s more important than ever to focus on the people that bring us joy. We are launching the #MyGratitude campaign to do just that.

May 5, 2020

Myotonic Publishes Clinical Care Recommendations for Pulmonologists

12 leading DM1 pulmonologists in Western Europe, the UK, Canada, and the US joined together to create the Clinical Care Recommendations for Pulmonologists Treating Adults with Myotonic Dystrophy Type 1.

May 5, 2020

April Advocacy Update

This month’s advocacy update provides a brief report on our ongoing efforts to increase federal funding for myotonic dystrophy research and includes practical information for community members in need of health insurance coverage during the COVID-19 pandemic.

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