Contact

Mailing Address

Myotonic Dystrophy Foundation
1259 El Camino Real, Ste. 150
Menlo Park, CA 94025, USA

Office Address

Myotonic Dystrophy Foundation
431 Burgess Dr., Ste. 200
Menlo Park, CA 94025, USA

Phone

Toll Free: 86-MYOTONIC or 866-968-6642
Direct: 650-267-5562

FAX

650-267-5564

News

October 4, 2019

The 2019 Myotonic Annual Conference Is A Wrap!

It's a wrap! Over 450 attendees, including almost 300 family members and caregivers, attended the 2019 Myotonic Annual Conference to learn, connect and improve their quality of life.

October 3, 2019

Adaptive Devices and Hacks for DM

Myotonic often gets questions from the community about adaptive devices that can help people living with DM manage activities of daily living, especially with tasks around the house. Our fabulous support group facilitators helped put together this list.

September 11, 2019

Hello Myotonic!

The organization you have known since its founding as the Myotonic Dystrophy Foundation has a new name, a new logo and a new look!

September 11, 2019

Social Worker Turned Caregiver Becomes Support Group Facilitator

After Julia Thorsness’ husband Jim died from complications of myotonic dystrophy at 59, she decided to put her professional and personal experience to work to help DM families.

August 20, 2019

Molecular Genetics Model of CDM

A review synthesizes the literature into a molecular genetics model of CDM and suggests more answers lie in research on DMPK locus epigenetics.

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