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It's a wrap! Over 450 attendees, including almost 300 family members and caregivers, attended the 2019 Myotonic Annual Conference to learn, connect and improve their quality of life.

Myotonic often gets questions from the community about adaptive devices that can help people living with DM manage activities of daily living, especially with tasks around the house. Our fabulous support group facilitators helped put together this list.

The organization you have known since its founding as the Myotonic Dystrophy Foundation has a new name, a new logo and a new look! 

After Julia Thorsness’ husband Jim died from complications of myotonic dystrophy at 59, she decided to put her professional and personal experience to work to help DM families.

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