Liz Florence lives in Dallas, Texas, with her husband, and two sons, Sam, 18, and Will, 20. Sam was born with Congenital Myotonic Dystrophy. Will is unaffected by Myotonic Dystrophy (DM). "I feel very lucky because my husband and I are healthy and we have the energy and ability to take care of Sam and to be there for our other son, Will."
Three years ago, the myotonic dystrophy community achieved a major victory in our work to better understand the causes of the disease and discover treatments and ultimately a cure. Since becoming an eligible condition for PRMRP funding, researchers have been awarded $6.1 million in federal grants to study myotonic dystrophy.