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Liz Florence lives in Dallas, Texas, with her husband, and two sons, Sam, 18, and Will, 20. Sam was born with Congenital Myotonic Dystrophy. Will is unaffected by Myotonic Dystrophy (DM). "I feel very lucky because my husband and I are healthy and we have the energy and ability to take care of Sam and to be there for our other son, Will."

Much is happening around us and the extraordinary effort we have all placed into transitioning our world to a home-based model is truly unbelievable. So I write you today with a simple reminder: Myotonic is here for you.

Three years ago, the myotonic dystrophy community achieved a major victory in our work to better understand the causes of the disease and discover treatments and ultimately a cure. Since becoming an eligible condition for PRMRP funding, researchers have been awarded $6.1 million in federal grants to study myotonic dystrophy. 

Myotonic is excited to announce multiple new resources will soon be available for download from our website! We hope you and your clinicians find these documents a valuable resource for your care and symptom management needs.

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