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It all started with the birth of my first and only child in 2007 at age 26. I noticed that my arms hurt constantly holding my newborn child, which then progressed to grip myotonia. I had read about myotonic dystrophy on the internet and felt sure I needed to be tested. Many months later, genetic testing proved I had DM2.

Have you shared your personal or family story yet? Already have a featured family story that needs to be updated? Help inspire others by sharing your journey with DM.

How has the Myotonic Dystrophy Foundation impacted your life? Please submit a 30-60 second video clip sharing your story about how the Foundation has impacted you!

Joel Revill has been a member of the Myotonic Board of Directors since 2018 although he’s long been connected to the community through his close friends.

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