We understand that this is a very challenging time and we would like to provide tips for patients, caregivers, and medical providers on the use of noninvasive positive pressure ventilation (NIPPV) if you have been exposed to this virus or have symptoms of COVID-19 infection.
Residents of the Bay Area in California, including Myotonic staff, are under strict Public Health orders to Shelter in Place for the next several weeks. We want to be sure you know that all Myotonic staff are prepared for this shift and have been successfully working from home. Myotonic is open, our website is active, and our resources are available.
10 leading DM1 cardiologists in Canada, Japan, Western Europe, the United Kingdom, and the United States joined Myotonic to create the Consensus-based Care Recommendations for Cardiologists Treating Adults with Myotonic Dystrophy Type 1.
The 2020 Myotonic Congressional Leadership Award was presented to Rep. Adam Schiff, an early supporter of our efforts to add myotonic dystrophy to the DoD's Peer Reviewed Medical Research Program (PRMRP) who recently worked to secure a visa for a critical DM fellowship.